A Mother’s Prayer

I sat in church yesterday, not my own home church, but one about 15 minutes away from our town. I was there to pray with and for a fellow family with a Down syndrome baby. We had never met before yesterday, except online through our local Ds chapter, but I …

Why I’m Not Afraid to Say “Retarded”

This particular article has been one in the making in my head for about 6 months now. It’s been close to my heart to write but I didn’t know when the appropriate time to post it would be. It would seem that I can’t keep my thoughts silent any longer. …

How Doing It Badly Still Counts

Our daughter Anna, who has Down syndrome, just turned one. Children with these designer genes tend to be delayed on their development- sometimes up to two or three years in motor skills. Because of this, Anna has received physical therapy since she was about 3 weeks old. This entails setting …

What It Should Have Said  — Hand Me Downs

I was cleaning out my closet today; sorting through old clothes, photographs, boxes of odds-n-ends. The kids were happily running around the house playing with each other and being about as loud as a herd of elephants wearing microphones. They came running into the closet, scampered around the mess for …

Words Not Required

Did you know that in first-world countries, studies have shown that the abortion rates for pre-natally-diagnosed Down syndrome babies runs anywhere from 50-90%? These babies are killed just because of the diagnosis! (More on that here.) It’s an astonishing number. It’s a devastating number. The most recent data collected in …

Letter to Anna Leigh: My New Niece — heidijoan

Anna Leigh. Sweet Anna Leigh. You have no idea how much your blessing of an existence in our family is. It makes total sense you were placed where you were. And we have a very special spot that is fit just for you. You came from a family that has …

The Sweeeeeeet Spot

I have to go off topic here to brag about our  ‘Little Miss’. Anna just turned 9 months old and is quite possibly the happiest baby in the world. She is content and very quiet, usually deeply inspecting the face of whoever is closest to her. She loves to smile …